Leah’s story is our story.
In July 2022, 12-year-old Leah was diagnosed with Diffuse Intrinsic Pontine Glioma (DIPG), a rare and aggressive form of childhood brain cancer.
Though DIPG accounts for only 10–20% of pediatric brain tumors, it is one of the most devastating, most often striking children between the ages of 5 and 10, but it can affect anyone—even adults.
Over the course of 17 months, Leah faced radiation, surgery, therapies, and clinical trials with extraordinary courage. In the midst of treatment, she discovered comfort and joy in crafting, eventually launching her own Etsy shop, LIVArtsandCrafts.
On January 6, 2024—just days before her 14th birthday—Leah’s battle came to an end. Her family now carries forward her spirit, creativity, and strength through this nonprofit organization, honoring Leah’s legacy and bringing hope to others.
Learn more about DIPG here.
Our mission
Painting by Leah (July 19, 2023)
Our mission is to stand alongside pediatric cancer families by raising awareness, advancing policy reforms, and expanding access to vital resources. We support children in their fight against cancer while harnessing the healing and transformative power of arts and crafts.
Our north star (vision)
Our vision is to create a world where every child facing cancer finds solace, strength, and hope through artistic expression. We aim to empower families with comprehensive support while driving systemic change toward a future free of pediatric cancer.
Meet the Team
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Blanca Velasquez
Leah’s Mother, Co-Founder, and Executive Director
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Virgilio Ventura
Leah’s Father, Advisor
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Marta Alvarez
Leah’s Aunt, Co-Founder, and Director of Operations
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Maria Casoni
Leah’s Aunt, Co-Founder, and Director of Policy and Advocacy
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Stefano Casoni
Leah’s Uncle, Director of Finance and Development